A colleague of mine asked to post this request on the 'net.....
Dr. Sharon Perlman at Cook County Health Department is looking to contact
anyone who had relatives with this tumor, or anyone currently researching
or familiar with this rare disease.
She can be reached M-F 9-4:30 at her office 708-445-2565.
Thanks.
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--- Leszek Balla
KA9GLW
les at rci.ripco.com