Genetic research EB??

me johan.parlevliet at tip.nl
Tue Oct 8 18:38:37 EST 1996


My son has a sever form of Dystrophical EB, which is a genetic disorder
of the skin. Sofar all the specialists we went to haven't been able to
help us, all they say is take good care of him, but they don't tell you
how.

The only hoop for my son is from what I understand is 'Genetic
Engineering' is anyone aware of any research being done, if so how far
they are?

The healing of his blisters and the scar tissue, causes a terrible itch,
specially during the night, does anyone know a product that can help my
son?



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