In article <blue-0306962120380001 at gw1-038.pool.dircon.co.uk>,
blue at dircon.co.uk says...
>>Would anybody know where there might be a discussion group that deals with
>Juvenile Batten's Disease, or of how other people have dealt with it
>within their families. I would be very to hear from other people on what
>they know regarding the above.
The Mailbase Discussion Group on inborn-errors of metabolism would be one
place to enquire about Battens Disease. Its homepage is:
http://www.mailbase.ac.uk/lists-f-j/inborn-errors/
which includes information about joining the list, or if you like you can just
post an enquiry to:
inborn-errors at mailbase.ac.uk
