Hi JC-
This info. is from l997, but maybe it'll be helpful. Try these sources:
#1- United Mitochondrial Disease Foundation
PO Box 1151, Monroeville, PA 15146-1151 PH.(412)793-8077
FAX (412) 793-6477
(??PH.(412)856-1297)
www.biochemgen.ucsd.edu/umdf
e-mail: mflemi at aol.com
e-mail: 74743.2705 at compuserve.com
#2- Lactic Acidosis Support Trust
1A Whitley Close
Middlewich
Cheshire, CW10 0NQ
United Kingdom
PH. 0(160)683-7198 (FAX same #)
(no e-mail or website add. avail. in '97)
I got this info. from a book I have about rare diseases. Contact: N.O.R.D.
(Natl. Org. for Rare Disorders,Inc.)
Ph. (203)746-6518
www.rarediseases.org
e-mail: orphan at rarediseases.org
Good Luck.
winnedbear at aol.com
