I am a neuropsychologist with a stronger "physiological" focus than
most neuropsychologists. Currently I'm studying variability of
symptoms in various disorders: chronic fatigue syndrome, Lyme disease.
fibromyalgia, post-concussion syndrome, MS.
I am asking people who experience changes in severity and/or pattern
of symptoms from day to day to monitor changes and report them to me.
Most useful would be daily ratings over a period of 1-2 weeks or more,
but it is possible that "one-shot" ratings can contribute something.
You can report on more than one symptom, but please rate them
separately: they may or may not parallel each other in their
variability. My special focus is on "cognitive" symptoms (e.g.
concentration, memory) and on "lethargy" (fatigue, inertia, decreased
drive, etc.), but believe it is important to see how these relate or
do not relate to others (e.g. pain).
For a given day (identified exactly by month and day of month, NOT day
of the week), rate symptom(s) as:
(1) worse, better, or about the same as usual
and (2) worse, better, or about the same as day before.
Identify yourself as little or much as you want, but tell me
(4) possibly relevant history (if concussion: more than
one? dates of each?)
(5) geographical location (zip code or phone area code)
PLEASE DO NOT POST REPLIES! IF YOU BELONG TO SUPPORT GROUP, PLEASE
RATE THE DAY BEFORE YOU HEAR WHAT OTHERS SAY! To be useful, ratings
must be independent of possible influence of responses by others.
email me directly OR, send letter/card to: Monitoring Project
Thiells, NY 10984
If you want feedback on results, tell me how you want to get them.
F. Frank LeFever, Ph.D.
New York Neuropsychology Group