IUBio

FM/CFS/CFIDS/ME and CONTAGION (NOT)

K. Weber kweber at efn.org
Tue Jun 25 11:50:11 EST 1996


A FIRE HAS BEEN RAGING ABOVE INCLINE VILLAGE NEVADA AND FOUR THOUSAND 
PEOPLE HAVE BEEN EVACUATED FROM THEIR HOMES.  I COULD NOT SLEEP LAST 
NIGHT THINKING ABOUT THEM.  AND ABOUT ALL THE PRECIOUS DATA WHICH IS IN 
DOCTOR'S OFFICES THERE.  THEY THINK THE FIRE WAS STARTED BY CHILDREN.  
THE LAKE TAHOE DISEASE AS IT WAS CALLED AT THE TIME OF THAT LOCAL 
EPIDEMIC STILL SEVERELY AFFECTS HUNDREDS OF PEOPLE THERE.
  THERE ARE ESTIMATED TO BE BETWEEN FIVE HUNDRED THOUSAND AND THREE 
MILLION INDIVIDUALS IN THE UNITED STATES WITH THE DISEASE ALONE.
WORLD-WIDE THERE ARE BETWEEN TEN 
AND THIRTY MILLION.  MANY OF THESE PEOPLE ARE DIAGNOSED WITH A DISEASE 
CALLED FIBROMYALLGIA.  IN THE THIRD WORLD PEOPLE MAY BE INCORRECTLY 
DIAGNOSED WITH AIDS.  ONLY WHERE ANTIBIOTICS ARE AVAILABLE ARE THE 
DISEASES EASILY DISTINGUISHED.  IN THE UNITED STATES BLACK AND BROWN 
PEOPLE SEEM TO BE MORE ILL THAN MORE AFFLUENT WHITES.

  Just a word about Osler's Web.  There has been a lot of confusion as to 
whether this book implies that CFIDS is contagious.  I'm on page one 
hundred and fifty or so (this is what has been recorded for me so far by 
recordings for the blind and dyslexic.)  If your eyes hurt so that you 
can't read as much as you ned due to physical causes,
you can get Osler's Web from RFBD for a fifty dollar membership fee. 
Then get unlimited reading indefinately.  I 
think that many of our PWC/PWFM's qualify for this program.  Even if you can 
read a little bit. Patrons can have some ability to read and still 
qualify for the program. 
  E-mail me for information.  
	Back to the contagiousness issue.  I do not know of any 
chronically contagious viruses.  Thank god.  The ones that we hear of 
chiefly affect cannibals and Europeans (BSE/HSE) and you do have to be 
exposed to raw infected meat.
If we lived in a cannaballistic society, there would be a greater chance 
that CFIDS would be contagious in the process of food contamination.  I 
would wager that neither you or I do.  Many of us are sexually active.  
The one case that Hiliary presents before page 150, is not intentended to 
be conclusive and no one from small town Nevada would think it was.  
There are'nt many places to be at night in small towns and the prostitute 
and her five clients would have had significant casual contact either 
with one another or with other infected people during the initial 
contagious phase.  For the vast majority of people this phase passess as 
a simple cold or other viral infection.  There is nothing to indicate 
possible trouble down the line.  The viruses which may cause FM/ME are 
contagious but not everyone infected with them gets the diseases. All of 
them are capable of passing the infection on.  Some viruses are better 
at producing CFS than others.  I 
like to think of them as talented or untalented.  Talented viruses cause 
epidemics.  Untalented viruses may cause the disease in susceptible 
people--probably most these susceptibilities are genetic or 
toxicological. Though people with insommia, those who overwork or are 
overworked, those who are exposed to extreme stress, or many, many 
viruses per season are also at higher risk.  Malnutrition is a 
prediposing factor in developed countries.  In poor counties where there 
is no access to anti-biotics, disease occurs but bacterial infections 
which also occur in the first world in PWCs are more often fatal.
	A way I sometimes think of it is that the infection is the animal 
and the disease is the tracks.  In order to suffer a bite, there must have 
been an animal.   Of course, another virus could come along and bite 
you and that would probably make you sicker if you have CFS. In fact, 
lots of different microscopic animals could come bite 
you and you could be covered all over in lots of tracks.  After so many 
years, that's what I'm like I think.  I don't know what HIllary will 
say after page 150, but doubt she will say FM/ME is contagious.
  Some people writing about this book have implied that the work of our 
FM/ME virologists somehow indicates some kind of chronic casual 
contagiousness.  Some viruses found in people with CFIDS -- called retro 
virus are infectious -- transmitted as aids is transmitted.  These are 
never casually contagious and there are none which are known to produce 
CFIDS alone.
  Most of Dr. Martin's most conclusive research involves the spinal fluid 
of PWCs and controls.  This is where the most destructive chronic 
infection is.  At no time does this type of chronic infection transmit 
virus except during cannabalism and meat preparation.  
  I believe there may be cases of CFS related to meat preparation in the 
developed world.  There has been no research to dat that would directly 
substantiate this. 




						Kathleen


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