Good days/Bad days: Chronic Fatigue, Concussion, etc.

F. Frank LeFever flefever at ix.netcom.com
Wed Jan 1 22:49:50 EST 1997


In <5a2k36$rl at net.bio.net> flefever at ix.netcom.com (F. Frank LeFever)
writes: 
>
>
>I am a neuropsychologist with a stronger "physiological" focus than
>most neuropsychologists.  Currently I'm studying variability of
>symptoms in various disorders: chronic fatigue syndrome, Lyme disease.
>fibromyalgia, post-concussion syndrome, MS.
>
>I am asking people who experience changes in severity and/or pattern
>of symptoms from day to day to monitor changes and report them to me.
>Most useful would be daily ratings over a period of 1-2 weeks or more,
>but it is possible that "one-shot" ratings can contribute something.
>
>You can report on more than one symptom, but please rate them
>separately: they may or may not parallel each other in their
>variability.  My special focus is on "cognitive" symptoms (e.g.
>concentration, memory) and on "lethargy" (fatigue, inertia, decreased
>drive, etc.), but believe it is important to see how these relate or
>do not relate to others (e.g. pain).
>
>For a given day (identified exactly by month and day of month, NOT day
>of the week), rate symptom(s) as:
>
>          (1) worse, better, or about the same as usual
>      and (2) worse, better, or about the same as day before.
>
>Identify yourself as little or much as you want, but tell me
>           (1) age
>           (2) sex
>           (3) diagnosis
>           (4) possibly relevant history (if concussion: more than
>               one?  dates of each?)
>           (5) geographical location (zip code or phone area code)
>
>PLEASE DO NOT POST REPLIES!  IF YOU BELONG TO SUPPORT GROUP, PLEASE
>RATE THE DAY BEFORE YOU HEAR WHAT OTHERS SAY!  To be useful, ratings
>must be independent of possible influence of responses by others.
>
>email me directly OR, send letter/card to: Monitoring Project
>                                           Box 199
>                                           Thiells, NY 10984
>
>If you want feedback on results, tell me how you want to get them.
>
>F. Frank LeFever, Ph.D.
>New York Neuropsychology Group




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