IUBio

Hemophagocytosis Syndrome. Help rescue Veronica

Paul I. Roda, M.D., F.A.C.P. paulroda at epix.net
Wed Jul 9 06:55:46 EST 1997


Nico Tranquilli wrote:

> TO WHOEVER COULD HELP RESCUE VERONICA
>
> Veronica is a girl nine years old.
> She, as her sister Maria Grazia who died a year ago, suffers from
> Hemophagocytosis Syndrome. She has often a very high and continuous
> temperature (treated with antibiotics), her spleen and her liver are
> enlarged, and she has a brain inflammation ("phlogosis", treated with
> cortisone)
> and viral infection. Her blood tests are generally altered, with low
> platelet levels.
>
> Please, her sister died of the same illness at the age of 10 after
> much pain.
> This is a rare disease, and the family needs to gather as much
> information as
> possible about it, and about hospitals and doctors specialized in the
> treatment
> of this syndrome all over the world.
>
> For any help, please contact:
>
> Miss Vizzari
> Medcenter Container Terminal
> Area Terminal Contenitori
> 89013 - Gioia Tauro (RC)
> Italy
> Tel. +39-966-7141
> Fax: +39-966-714261
> E-mail address: veronica at nikos.com

 Try oncolink.upenn.edu -- there's a lot of pediatric information on
this page supplied by the Children's Hospital of Phila. It might be
worth traveling to see Beverly Lange at Childrens




More information about the Immuno mailing list

Send comments to us at biosci-help [At] net.bio.net