Nico Tranquilli wrote:
> TO WHOEVER COULD HELP RESCUE VERONICA
>> Veronica is a girl nine years old.
> She, as her sister Maria Grazia who died a year ago, suffers from
> Hemophagocytosis Syndrome. She has often a very high and continuous
> temperature (treated with antibiotics), her spleen and her liver are
> enlarged, and she has a brain inflammation ("phlogosis", treated with
> and viral infection. Her blood tests are generally altered, with low
> platelet levels.
>> Please, her sister died of the same illness at the age of 10 after
> much pain.
> This is a rare disease, and the family needs to gather as much
> information as
> possible about it, and about hospitals and doctors specialized in the
> of this syndrome all over the world.
>> For any help, please contact:
>> Miss Vizzari
> Medcenter Container Terminal
> Area Terminal Contenitori
> 89013 - Gioia Tauro (RC)
> Tel. +39-966-7141
> Fax: +39-966-714261
> E-mail address: veronica at nikos.com
Try oncolink.upenn.edu -- there's a lot of pediatric information on
this page supplied by the Children's Hospital of Phila. It might be
worth traveling to see Beverly Lange at Childrens