Hello all,
a friend of mine, 28, female, has a condition diagnosed as
"chororetinitis". But a search in the web for this keyword was
unsuccessful. Therefore, I turn to you for further enlightment and
help.
She suffers from arthritis for almost a decade, now. Therefore, I
suppose, it's basically an autoimmune desease. In addition, for a
couple of years, she suffers from surges that repeat in about semi-
annual intervals. During these surges which last for a month or 2,
she's virtually unable to move - bound to stay in bed. This situation
goes together with an inflammation of the blood vessel layer below the
retina of both her eyes. During a surge, her vision is dramatically
reduced - blurred sight, unable to read. After recessing, scars remain
in the retina that produce large blind spots in her vision field. On
the left eye, she's already blind and she was told that in the run of
a a future surge, she might become definitely blind on both eyes. Her
permanent drowsiness might be also part of the desease, I don't know.
She doesn't have a clear understanding of her condition and,
appearently, the doctors are also at a loss. She was already examined
in a dozen of major clinics here in Germany (she's a German nationale)
with no definitive result as to the cause of these symptoms and her
overall condition.
Does anyone of you know about this condition or where to obtain
specific information? Are there other newsgroups or mailing lists that
are more appropriate for this subject? I'd highliy appreciate any
hint, since she's in a desperate situation.
Thank you very much in advance
Edgar
EdgarHaegele at t-online.de
