If you have this disease please reply to my e-mail. I am trying to form a
support group here in the US. I think there is a support group available in
Europe. If you are in Europe and a part of a support group, I would like to
hear from you as well. Doctors, I need your help too. If you are treating
patients with this disease, I would like to hear from you. Mainly to
coordinate with my doctor.
Thank you.
Shantelle Grace
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