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Bacteria in Interstitial Cystitis

Nancy Michelli jewel3 at ix.netcom.com
Mon Dec 18 20:10:13 EST 1995


                        


    I have Interstitial Cystitis. I delved into researching what could
be the cause of this disease.  Yes I know many doctors/researchers have
*tried* but I am the patient....the sufferer....and I think we the
victims look at it differently.  I KNOW how I got mine.  It started
with my first UTI that I KNOW that I got when taking care of my disable
mother who came down with a UTI.  I am in the process of obtaining her
records to see what bacteria it was that caused her UTI.  I am sure it
will be the same as the ones that have been found in me.

My question is this:  There is a Dr. Paul Fugazzotto; a microbiologist
that has been in the business since about 1939 and is about 80 years
old.  He is the only one I know that can culture out the urine of an IC
patient and find the pathogen.  He uses a long process that has to do
with a broth wash and centrifuging then growing it in agar for a few
days, sometimes longer.  He usually finds Enterococcus and sometimes
micrococcus and even occasionally pseudomonas or other streptococci.
Does anyone use this method he uses??  If not......why not???  I am
doing so much better on the antibiotics that he has suggested (and
tested against the Enterococcus) that I wonder why we can't convince
doctors and labs to do the same.  They only want to count growth and if
there isn't a certain number, they don't look for it.

Anybody have any answers?

Nancy

P.S.  Anyone interested in discussing Interstitial Cystitis can do so
by going to    alt.support.inter-cystitis



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