Friedreich's ataxia Research?
sherlock at mailbox.ioa.com
Thu Aug 17 17:29:02 EST 1995
. I am a 42-year-old male with late-onset Friedreich's ataxia, the
oldest of three siblings with the condition. I was originally
diagnosed in 1973 at Memorial Hospital, Chapel Hill, NC. In 1978, Dr.
Alan Roses at Duke University examined me for a few days. In 1988 I
participated in a study at The University of Michigan in which P.E.T.
scans were used.
I'm interested in being involed in research efforts for this
condition. I am college educated and feel, at times, somewhat
frustrated that I'm not involved in some way in researcg efforts as a
willing, articulate research patient. I would appreciate any
information on volunteering for research, institutions currently
involved in researching FA or similar conditions.
J.David Kiser sherlock at mailbox.ioa.com
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