Friedreich's ataxia Research?
sherlock at mailbox.ioa.com
Sun Aug 27 18:50:59 EST 1995
I am a 42-year-old male with late-onset Friedreich's ataxia, the
oldest of three siblings with the condition. I was originally
diagnosed in 1973 at Memorial Hospital, Chapel Hill, NC. In
1978, Dr. Alan Roses at Duke University examined me for a few days.
In 1988 I participated in a study at The University of Michigan in
which P.E.T. scans were used.
I'm interested in being involed in research efforts for this
condition. I am college educated and feel, at times, somewhat
frustrated that I'm not involved in some way in research
efforts as a willing, articulate research patient. I would appreciate
any information on volunteering for research and I hope to contact
institutions currently involved in researching FA or similar
Please respond to my e-mail address, sherlock at mailbox.ioa.com.
J. David Kiser
. . . . . . . . . . . . . . . . . . . . . . . . .
J. David Kiser /_\ | "When you eliminate the impossible,
sherlock at mailbox.ioa.com | whatever remains, no matter how
In Western North Carolina | improbable, must be the truth."
| --Sir Arthur Conan Doyle
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