Good days/Bad days: Concussion, Lyme, CFS, etc.
F. Frank LeFever
flefever at ix.netcom.com
Sun Dec 29 15:05:14 EST 1996
In <59smh4$jhr at sjx-ixn2.ix.netcom.com> flefever at ix.netcom.com(F. Frank
>In <59kucr$lap at sjx-ixn10.ix.netcom.com> flefever at ix.netcom.com(F.
>>I am a neuropsychologist with a stronger "physiological" focus than
>>most neuropsychologists. Currently I'm studying variability of
>>symptoms in various disorders: chronic fatigue syndrome, Lyme
>>fibromyalgia, post-concussion syndrome, MS.
>>I am asking people who experience changes in severity and/or pattern
>>symptoms from day to day to monitor changes and report them to me.
>>Most useful would be daily ratings over a period of 1-2 weeks or
>>but it is possible that "one-shot" ratings can contribute something.
>>You can report on more than one symptom, but please rate them
>>separately: they may or may not parallel each other in their
>>variability. My special focus is on "cognitive" symptoms (e.g.
>>concentration, memory) and on "lethargy" (fatigue, inertia, decreased
>>drive, etc.), but believe it is important to see how these relate or
>>not relate to others (e.g. pain).
>>For a given day (identified exactly by month and day of month, NOT
>>of the week), rate symptom(s) as:
>> (1) worse, better, or about the same as usual
>> and (2) worse, better, or about the same as day before.
>>Identify yourself as little or much as you want, but tell me
>> (1) age
>> (2) sex
>> (3) diagnosis
>> (4) possibly relevant history (if concussion: more than
>> one? dates of each?)
>> (5) geographical location (zip code or phone area code)
>>PLEASE DO NOT POST REPLIES! IF YOU BELONG TO SUPPORT GROUP, PLEASE
>>RATE THE DAY BEFORE YOU HEAR WHAT OTHERS SAY! To be useful, ratings
>>must be independent of possible influence of responses by others.
>>email me directly OR, send letter/card to: Monitoring Project
>> Box 199
>> Thiells, NY 10984
>>If you want feedback on results, tell me how you want to get them.
>>F. Frank LeFever, Ph.D.
>>New York Neuropsychology Group
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