I am a 35-year-old male, who had in 1986 a spinal cord injury at
the level of Th12-L1. Fortunately there was just a period of few
days, when I had a total paraplegia, after which I started to move
my legs more and more.
At present I walk with a crutch, but there are many things which
do not go well. Among them the major problems are the bladder,
which I do not feel at all and the pain along my left leg.
Whereas I feel quite normally the right, I do not have a good
perception of some areas of the left leg; the sensitivity lacks on the
back side and down below the knee.
Since the injury I have strong pain along this leg, it has increased
and spread over the past years. Then I had learned that there is a great
psychological component in this matter, I can live better when I do not
care about pain. Sometimes it begins when the
weather is changing, other times it is due to a wrong position of
sitting (bad circulation), or when I get angry!
A good thing is that the frequency of hard pain problems is quite
low, say once per month or less. On the other hand I have pain
attacks every day, but they are just isolated occurrences (they
could be even strong, my eyesight can get dim) and I carry on.
The strong attacks are of a different kind: there is a beginning
when I feel a pang in a certain part of the leg and then it repeats at
intervals. It can last 24 hours and it depresses me. It is a "cerebral
suffering", because I am expecting the arrival of the pang and I am afraid
of it, I can not relax.
In such case I take some medicines, which do not help much, I can
say nothing. The first I knew was TAVOR (these trade-names are
used in Italy), just to relax. Some times I fell asleep thanks to it, but
just for a while. With ROIPNOL I sleep certainly, but, strange,
sleeping I feel the pain too. Afterwards they gave me SIRDALUD
(tizanidina, 6mg), CONTRAMAL (tramadolo, 100mg), TORA-DOL
(ketorolac trometamina, 30mg), DORSIFLEX (mephenoxalon, 200mg)
and LIOMETACEN (indometacina meglumina, 25mg).
Among these treatments I found that keterolac can help, at least
when pain arises due to temperature (cough, infections etc.) But
now I have problems with it. It makes me have asthma. So doctors
substituted it with indometacina, which I did not tested properly (I
took pills only, while injections are more effective).
Doctors say that I should take the SINEQUAN (doksepin, 25-
50mg) regularly every day, but I am against a treatment created
for mental problems. It should calm down my nerves, but...? Taking
pills every day for months or years will destroy my stomach, I do
not trust such a treatment. To be true I tried once for one month.
Since there was no improvement, I left it. Doctors say that it should
be taken for very long period, it should improve my life.
Now I am confused. It is better to take a strong drug once per
month, suffering every day a little, or having a long term treatment
trusting that it will help, that it will not destroy my brain and my
stomach? What about alternative therapies?
Can somebody send me a mail or answer in this news group?
I will be very grateful.
Please, send mail to the following address: i3008855 at utsax7.univ.trieste.it
and write "To Walter" (Also try my address, though I had problems with it.
It could be that I lose some replies.) Thanks.