Help for Giuseppe

[Donatella Mastrangelo]

I really don't know if this is the right newsgroup, but I try anyway 
to tell you about Giuseppe.

He is a young boy (9 years old) affected by GM1 Gangliosidosis.
This kind of illness will be letal. It is called Sandoff Desease.

Is there anybody who would be able to tell us information and/or 
indications of specialized person who could take care of him.

There are only few cases in the world and that is the reason why 
it is so difficult to find help.

Please, let us have as much as possible to help him.
We are calling from Italy.

Thank you so much!

Donatella Mastrangelo
e-mail: jadeye at flashnet.it