Roberto is a little child (2 years old) living in Italy.
He is affected by a serious genetic desease, which is itemized as:
SMA 11 (Spine Muscular Atrophy)
with deletion of the exo. no. 7 and 8 gene SMA.
Roberto is still hoping to meet someone who can help him.
We are looking for specialists in this area, anywhere in the world,
who could take care of him.
Any kind of information and/or indications are welcome.
(Please send messages to : matteo.dambrosio at cselt.stet.it)