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cortical visual impairment

Someone Someone at noname.com
Wed Sep 24 15:15:00 EST 1997

The following was posted on sci.med.vision; perhaps someone here
can help answer this? 

olehippies wrote:
> My 10-year old daughter is cortically visually impaired due to an anoxic
> event at 6 months of age (near-miss SIDS vs. encephalitis).  Her brain
> has "rewired" greatly (she's been a patient of Creig Hoyt at UCSF who
> is, I understand, the guru of CVI in the States).  Suddenly her
> ophthalmologist says her optic nerve is degenerating.  I was under the
> impression that the optic nerve has nothing to do with CVI...is this a
> secondary problem or what?  She also has a wandering eye (lazy eye??)
> which the doc says we won't attempt to treat at this point.  And about
> six months ago, he prescribed glasses due to an unrelated (I think)
> myopia in one eye (NOT the "lazy" eye -- the lens on that side is
> clear).
> She's been doing so well that I admit I've been remiss in keeping up
> with what's been going on in the field lately.  Is this all within the
> usual realm of CVI?  Why is her optic nerve degenerating?  Is there
> anything we can do to minimize this?  Does this mean her vision might
> get worse with time?  We've been very lucky, as it's my understanding
> that most kids with CVI also have CP -- she has some extremely minor
> muscle tone problem but not enough to hinder her in any way, except some
> slight fine motor control in her hands/wrists/fingers.  She is very
> slightly developmentally delayed.  Again, we consider ourselves
> extremely lucky.
> We've recently moved out of county and her prior IEPs have included
> Orientation and Mobility with the use of a cane.  I don't feel she needs
> to be cane-oriented at all -- I feel she should be taught to use what
> vision she has (which is quite a lot, actually -- she can sees stars in
> the night sky).  But perhaps they know something I haven't been aware of
> ...will the optic nerve degeneration necessarily lead to worsening of
> her vision?  Again, she's only 10 but we have to make plans for her
> future.
> Thanks,
> fw

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