Olivoponto Cerebellar Atrophy (OPCA)

Andy Bell gt5567c at prism.gatech.edu
Wed Sep 24 22:20:18 EST 1997


Hello,

I have never read or posted anything to this group, so I hope
I'm in the right place.

I would like to find out what I can do to find out more about
OPCA.  My father was diagnosed with this disease 10 or so
years ago, and is in advanced stages now.

What I do know from my own research is that the disease is
hereditary on a 50/50 basis, and that it usually shows up
around the ages of 25 - 35 years.

What I want to know is if this is true. I am 22 years old, a
college student and recently married.  I have decided not
to have children of my own since I do not know if I might
develop the disease (there have been documented cases
of the disease not showing until the age of 55, too old for
me to have children.  If I do, I do not want my children to
go through what I am, namely seeing my father degrade
day by day.

Maybe some of you have researched/studied this condition,
or have colleagues who have and can reference me to them.

Any and all information is greatly appreciated.

Regards,

Andy Bell




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