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cortical visual impairment

Chuck Davis roshicorp at ROSHI.com
Wed Sep 24 20:50:47 EST 1997

On Wed, 24 Sep 1997 22:15:00 +0200, Someone <Someone at noname.com> 

> The following was posted on sci.med.vision; perhaps someone here
> can help answer this? 
> Regards,
> Geertje
> --------------------------------------------------------------------
> olehippies wrote:
> > 
> > My 10-year old daughter is cortically visually impaired due to an 
> > event at 6 months of age (near-miss SIDS vs. encephalitis).  Her 
> > has "rewired" greatly (she's been a patient of Creig Hoyt at UCSF 
> > is, I understand, the guru of CVI in the States).  Suddenly her
> > ophthalmologist says her optic nerve is degenerating.  I was 
under the
> > impression that the optic nerve has nothing to do with CVI...is 
this a
> > secondary problem or what?  She also has a wandering eye (lazy 
> > which the doc says we won't attempt to treat at this point.  And 
> > six months ago, he prescribed glasses due to an unrelated (I 
> > myopia in one eye (NOT the "lazy" eye -- the lens on that side is
> > clear).
> > 
> > She's been doing so well that I admit I've been remiss in keeping 
> > with what's been going on in the field lately.  Is this all 
within the
> > usual realm of CVI?  Why is her optic nerve degenerating?  Is 
> > anything we can do to minimize this?  Does this mean her vision 
> > get worse with time?  We've been very lucky, as it's my 
> > that most kids with CVI also have CP -- she has some extremely 
> > muscle tone problem but not enough to hinder her in any way, 
except some
> > slight fine motor control in her hands/wrists/fingers.  She is 
> > slightly developmentally delayed.  Again, we consider ourselves
> > extremely lucky.
> > 
> > We've recently moved out of county and her prior IEPs have 
> > Orientation and Mobility with the use of a cane.  I don't feel 
she needs
> > to be cane-oriented at all -- I feel she should be taught to use 
> > vision she has (which is quite a lot, actually -- she can sees 
stars in
> > the night sky).  But perhaps they know something I haven't been 
aware of
> > ...will the optic nerve degeneration necessarily lead to 
worsening of
> > her vision?  Again, she's only 10 but we have to make plans for 
> > future.
> > 
> > Thanks,
> > 
> > fw

Check this webpage. It could help.


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