Cranial Nerve degeneration

Yitzchok Dukesz learn at
Thu Aug 6 22:43:34 EST 1998

KD wrote in message <35c9af47.250420376 at>...
>On 6 Aug 1998 12:56:12 GMT, didier at (Didier A.
>Depireux) wrote:
>>In article <6qb6hv$nmq$1 at>, Yitzchok Dukesz wrote:
>>>It is her impression that while her neurologist is competent, she is not
>>>'doing enough' to research this rare disease and exchange information
>>>other specialists in different centers across the world.
>>I am not an MD, but I know (and you probably know too) that Thiamine (B1)
>>deficiency leads to cranial nerve weakness (laryngeal, face & tongue). >>
>>Didier A Depireux                              didier at
>>>You would also expect to see cognitive impairmant -

Thank you very much for your responses. I will look in to this....let me ask
you another question...if you would have such a problem, which US center
would you go to that has in your opinion the best neurological expertise for
such a problem. would one obtain "objective evidence" of impairment of cranial
nerves 9, 10, and 12 (besides clinical exam). Can you get NCS/EMG or evoked
potentials for these nerves.

Thanks again

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