Many thanks to Cijadrachon!
In the meantime I got some more understanding in the translation, I´ll
correct/add in Cijadrachon´s text.
Cijadrachon wrote:
> (Bad vague partial translation)
Pretty good!! Thilo
> Please help with the following problem:
>> After a first hospitalizing of our child in the children's clinic in
> Paderborn, Germany, we are not knowing what to do and seek help.
>> Around Christmas time we observed that our baby, Dana, 8 months,
> did things disquiting us, always after waking up:
>> She squeeze here eyelids shut and also her lips, as if she had to
> swallow something bitter.
> Her head indicated a nodding (slower than when sneezing).
> Sometimes here hands, parallel to the body, knocked on her blanket.
> Within the "fit" she just reacted to talking to her in limited form,
> afterwards she was awake normally.
>> Sometimes such would last some seconds, sometimes minutes.
>> Since the 10th of January it stopped.
> Fortunately we could record the last one on video (the video is yet not
> digitalized)
>> For several days she was in a children's hospital in Paderborn for an
> "examination-series", and these are results of it:
>> The EEG showed strong deviances from the usual pattern
> (see [?]example in added part 1**we could provide the EEG on demand,
> Thilo)
>> The recorded EEG while in the clinic is distinctly more normal,
> but that might have to do with medications give the day before for
> anaesthetization for the "Kernspinn-Untersuchung".
****the "kernspin" is somehow like "x-ray-ing" but using electromagnetic
impulses.(nuclear spin tomography)
> [Don't know the translation, literally nucleus or core - spin -
> examination.]
> Which showed for the entire rim area damage like [?]embedded fog.
****we could providesome BMPs on demand, Thilo
> The development - examination (when Dana was 8 months old) for most
> areas resulted in the status of 12 months
>> Blood and urine examinations were without special results, apart from
> a slight deviations in the [?]"Laktose"-amounts (that could have been
> caused by stress when the blood was taken).
>> The medical superintendent of that ward in a final talk said that so
> far the according problem had not been diagnosed in Paderborn
> and that the examinations need to be continued.
>> The cramps according to the the video recording however do not seem
> like [?] BNS.
*** BNS means "Blitz Nick Salam Syndrom, also known as "West syndrom" or
"Jackknife syndrom", Thilo
> The damages in the brain might have to do with a metabolism defect.
> This might a fairly harmless prenataly caused static condition.
> (Also in a second diagnosis from Muenster it was assumed that there
> might be metabolism damage.)
> Or the defect is acute and every day the brain gets damaged more by
> the "Ablagerung". [Dictionary: sedimentation, forming of a deposit.
> Referred to earlier with the "embedded fog".]
***It is something like "organic waste". for example: the baby´s organism
is unable to use material "XYZ", but also unable to get rid of it on the
"natural way" (pampers). It is using the brain area as "rubbish pit"
>>> We were told that chances to find counter-measures after realizing the
> cause might be there but small.
>> There are very many possible tests via which one might get closer to a
> better diagnosis, but to maybe spare our baby endless rows of them,
> and also to not lose time in a race against a metabolism defect,
> we are turning to people who might have experience with such or
> similar cases?
>> We hope to find advice for a more aimed search for the cause of the
> problems and how to help our daughter.
>> We'd appreciate very much if someone knowing professional / experience
> based advice could contact us.
> >>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>>
>> (Bad and often not literal partial translation of Thilo + Erika's
> previous text.)
