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Cerebellum Degeneration

hummerlady at my-deja.com hummerlady at my-deja.com
Mon Jan 3 01:00:06 EST 2000


Thank you Kenneth.  I will follow your advice. Do you mind if I ask you
what your story is?
Gloria
 In article <386D90EB.1772B919 at earthlink.net>,
  kenneth Collins <kpaulc at earthlink.net> wrote:
> it will be 'taxing', so be gentle with yourself, but give extra effort
> to seeking out and doing =novel= stuff. the novel stuff needn't be
> "big-deal" stuff. it just needs to be novel.
>
> alter your routine, routinely, in small ways. look for newness. revell
> in it. the only thing you have to 'watch-out' for has to do with
novelty
> becoming 'normal' to you, but not to others with whom you interact.
so,
> just be careful not to get too-'strange' (too 'novel') for folks
around
> you, because that will tend to result in their 'moving away from' you,
> which is not good.
>
> this stuff that's pleasurable anyway, will maximize your nervous
> system's ability to sustain it's neurological dynamics.
>
> ken collins
>
> hummerlady at my-deja.com wrote:
> >
> > I received three forms of radiation when by the time I was 9 months
> > old. I had benign cavernous hemangiomas on the left side of my face.
> > As I grew older, my neurological problems grew worse.  I now am
told I
> > have cerebellar brain degeneration as a result of the radiation.
What
> > can I expect my prognosis to be with this diagnosis?  I want to know
> > the truth.  I have ataxia, difficulty with vertigo, vomiting,
> > dysequilibrium, visual problems, nerve damage throughout my body,
> > severe muscle spasms, and much more.  Some days I can struggle and
walk
> > without a mobility aid and on other days I need a wheelchair.  I am
> > very independent.  I exercise 5 times a week the best I can (mostly
in
> > water).  I have a loving and supportive husband.
> >
> > Sent via Deja.com http://www.deja.com/
> > Before you buy.
>


Sent via Deja.com http://www.deja.com/
Before you buy.




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