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Cerebellum Degeneration

kenneth Collins kpaulc at earthlink.net
Mon Jan 3 12:26:47 EST 2000

hi, Gloria (Lovely name). i'm a 'radical' Neuroscientist, and, to most
folks, "persona non-grata". the 'story' of how such became my lot in
Life is long and boring. (but if you spend a bit of 'time' here in the
B.N NG, you'll catch a few 'details' that i'm Obliged to document.)

the guidance i gave you is =Certain-to-work= stuff.

that's all that matters, no?

your own 'story' won you a place in my Heart. I Love folks who don't
"quit", and i Love folks who, like your Husband, join in folks' not

and i'll tell you Mrs. Gloria, the Kindness in your reply 'bathes' me in

cheers, ken collins

hummerlady at my-deja.com wrote:
> Thank you Kenneth.  I will follow your advice. Do you mind if I ask you
> what your story is?
> Gloria
>  In article <386D90EB.1772B919 at earthlink.net>,
>   kenneth Collins <kpaulc at earthlink.net> wrote:
> > it will be 'taxing', so be gentle with yourself, but give extra effort
> > to seeking out and doing =novel= stuff. the novel stuff needn't be
> > "big-deal" stuff. it just needs to be novel.
> >
> > alter your routine, routinely, in small ways. look for newness. revell
> > in it. the only thing you have to 'watch-out' for has to do with
> novelty
> > becoming 'normal' to you, but not to others with whom you interact.
> so,
> > just be careful not to get too-'strange' (too 'novel') for folks
> around
> > you, because that will tend to result in their 'moving away from' you,
> > which is not good.
> >
> > this stuff that's pleasurable anyway, will maximize your nervous
> > system's ability to sustain it's neurological dynamics.
> >
> > ken collins
> >
> > hummerlady at my-deja.com wrote:
> > >
> > > I received three forms of radiation when by the time I was 9 months
> > > old. I had benign cavernous hemangiomas on the left side of my face.
> > > As I grew older, my neurological problems grew worse.  I now am
> told I
> > > have cerebellar brain degeneration as a result of the radiation.
> What
> > > can I expect my prognosis to be with this diagnosis?  I want to know
> > > the truth.  I have ataxia, difficulty with vertigo, vomiting,
> > > dysequilibrium, visual problems, nerve damage throughout my body,
> > > severe muscle spasms, and much more.  Some days I can struggle and
> walk
> > > without a mobility aid and on other days I need a wheelchair.  I am
> > > very independent.  I exercise 5 times a week the best I can (mostly
> in
> > > water).  I have a loving and supportive husband.
> > >
> > > Sent via Deja.com http://www.deja.com/
> > > Before you buy.
> >
> Sent via Deja.com http://www.deja.com/
> Before you buy.

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