someone knows lorenzo's oil?
zhil at online.no
Wed Apr 3 14:52:28 EST 2002
I can probably not help you, but I saw glimpses of the same movie you
were refering to, while I was typing to some friends on various NG's.
I saw the part were they searched for long-chained unsaturated fatty acids.
Anyway, I did a search with "lorenzo's oil" and "fatty acids", and here is
the link describing de-myelinated axons [Adrenoleukodystrophy (ALD)]
- and the treatment-program.
Maybe it will help somewhat, at least it's a beginning.
And I did another search with "HMSN" and "myelin" and here is the result:
"Hereditary Motor and Sensory
Sometimes known as peroneal muscular atrophy or
Charcot-Marie-Tooth Disease (CMT)"
This is what you're looking for.
If you're in an emergency, why not contact your nearest MD ?
>From my experience with this NG, you should probably get a response
from Richard.Norman (rnorman at umich.edu) or another expert.
I'm just a humble student, and I hope I haven't caused you to spend
unecessary time reading this post.
"André Rohr" <rockettalk at gmx.ch> skrev i melding
news:a8d0f8$rfrqk$1 at ID-99527.news.dfncis.de...
> i've got HMSN (cmt-syndrome), type 1, where the myeline around the nerves
> decrease. there's a film called lorenzo's oil, does someone know about that?
> its based on a true story, there was a boy with another desease, but also
> myeline was involved. hes desease stopped, or slowed down very much.
> how does this oil work? ant why? what exactly is this oil?
> thanks alot!
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