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Sun Apr 10 20:48:56 EST 2005


PLEASE...CAN ANYONE HELP US??  We have a one month old baby boy who is 
currently on a ventilator, an IV, and is being dripped food through a 
tube to his stomach.  
	Bobby was flown via helicopter from Kitchener Waterloo Hospital to 
McMaster University Health Center after experiencing several periods when 
he would stop breathing for no apparent reason and turn shades of white 
and blue.  He had to be continually resuscitated.  Occasionally there 
would be mild seizures preceading the cessation of breathing.  There is 
also a some cephalic swelling. (Not hydrocephalus or encephalitis).  
	He has undergone EEG's, CAT scans, blood tests, x-rays, 
respiratory massage, as well as a couple of spinal lumbar punctures.  
He has been given sedatives, (phenobarbitol), antibiotics (erythromycin), 
anti-convulsant medication (phenytoin) as well as shock medication 
and more.  
	The LP has shown an "abnormality" of the cerebral spinal fluid.  
The problem now is the infectious disease specialist is working as fast 
as he can to try to identify the "virus" or whatever may be the cause.
The x-rays have also shown a partial collapse of one lung.  The doctors 
believe this to secondary to the primary cause.
	Most of the major viruses (such as herpes and meningitis) have failed to 
grow cultures.  We are now looking for less know organisms or mechanisms.
  	
	QUESTION:  Has anyone ever had experience with the type of 
symptoms Bobby's exhibiting??  Has anyone ever had any familiarity with 
any of these "lesser known cerebro-spinal agents"??  We believe if we can 
identify the virus we may be on the road to recovery.

	I will be going back to the hospital in Hamilton in the morning 
and will be away from my mailbox for a few days but would greatly 
appreciate any help!  If anyone knows of any other newsgroups or 
Listservs that would be appropriate for this plea, please forward the 
message on.					....thanks...Mike
						msimmons at dcs1.uwaterloo.ca






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