Call for help for "the HHV-6 patient"

Lee R. Martin LRM at zeus.ahabs.wisc.edu
Tue Nov 21 15:23:19 EST 1995


A while back I posted on behalf of a friend of a friend diagnosed with a
"syndrome induced by HHV-6".  Specifically, he wanted to know more about
the disease and what, if any, treatments were available. Many of you
kindly pointed out HHV-6 is not known to cause such a disease, and even
so, could probably be countered with standard anti-herpes chemotherapy.
I got ahold of this person. His name is Tracy and he lives in Wichita,
Kansas (USA). Based on what Tracy told me, I think he's been both
misdiagnosed and misguided by his physicians. So, I would like to petition
help for Tracy so he can get competent treatment for his illness.
Here's what I know about his case:
    
Two years ago, Tracy contracted what appeared to be a common cold.
However, this "cold" persisted, slowing transmogrifying into a bad cold
that has afflicted him since. Throughout the initial eight months, Tracy
had swollen lymph nodes and was quite lethargic. He saw an infectious
disease specialist, renowned in the Wichita area for her expertise in
treating HIV+ patients (BTW, Tracy is HIV-). The physician ran a battery
of lab tests on Tracy, but apparently found nothing unusual. Tracy sought
the opinion of a different doctor, who after exhaustive lab tests,
diagnosed him with chronic fatigue syndrome (CFS). The lab work revealed
"unusally-high levels of EBV and HHV-6 antibodies". In addition, "high
amounts of Candida" were observed. For reasons unknown to me, this second
physician believed Tracy's symptoms were caused by HHV-6. And, apparently
told Tracy nothing further could be done for him.
Tracy thus sought treatment from a practitioner of holistic health care.
In accordance with this treatment (and much to his dislike), Tracy has
since been following a strict vegetarian diet and has greatly changed his
lifestyle. Tracy's symptoms have subsided somewhat, but Tracy is still
keen on finding out his real problem and perhaps a more plausible
treatment.

I would appreciate hearing or seeing a post from anyone interested in this case.

-- 
Lee R. Martin
LRM at zeus.ahabs.wisc.edu



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