I don't have any specific suggestions but I can tell you what my current
thoughts are. My son is 6 years old and has functional antibody deficiency
syndrome which is related to your condition. He gets gammaglobulin
infusions every three weeks. This prevents infections from setting in.
My feeling is this is only treating the symptom and I wonder if there is
therapy which would improve the immune system itself. His doctor is not
pursuing any other therapy at this time.
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The preceding is my opinion and not necessarily the opinion of my
employer.