My mother has been diagnosed with Common Variable Immuno-deficiency
Syndrome, aka Common Variable Hypogammaglobulinemia, Primary
Immunodeficiency: Common Variable. Her condition is complicated by
arthritis/fibromyalgia.
She is getting good care, but has had to go through a lot of hit-or-miss
approaches to treatment.
I'm looking for any newsgroups, bulletin boards, etc. where we can get
information, also maybe where she can share information/experiences with
other patients and physicians. Suggestions for reading would also be
welcome. please advise wes9 at columbia.edu.
Thanks.
