In the USA information should be available from
DYSTONIA MEDICAL RESEARCH FOUNDATION
1 EAST WACKER DR CHICAGO ILL USA 60601-2098
TEL 312- 755- 0198 FAX 312 -321- 5710
if not at this address you could try contacting
a movement disorder clinic or ask at an
American Parkinson disease Association-APDA- Information
and Referral centre
good luck
ARutherford
