I am the 24 year old child of a Huntington's patient. I am just now
beginning to fully understand the disease. My father was diagnosed with
the anomoly about 5 years ago but is just now beginning to really show
the motor problems. He, as well as my granddad, was fortunate to have
a late onset at 50 years old.
I was recently rejected for Disability Insurance, Life Insurance, and
additional medical insurance based on my dad's Huntington's disease. My
father is losing all ability to work and cannot collect disability. This
disease is proving to be financially difficult as well as emotionally
explosive.
I am very much interested in learning more about the disease. I would
like to be pointed to some texts covering the biology of the disease, the
availabletesting methods, and the ethics and problems with testing.
I would also appreciate any information on organizations involved
in funding research so that I may begin donating money and
whatever else I can.
I will summarize all information I receive on this group if I receive
any.
Thanks to anyone who is able to help!
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Erich Fickel __o
erich_fickel at ccm.jf.intel.com _-\<,_
"I'd rather be cycling" |_|/ |_|
