In article <3kvmtb$7co at news.jf.intel.com> Erich_Fickel at ccm.jf.intel.com (Erich Fickel) writes:
>From: Erich_Fickel at ccm.jf.intel.com (Erich Fickel)
>Subject: Huntington's Disease Information - Research Sites
>Date: 25 Mar 1995 00:08:11 GMT
>I was recently rejected for Disability Insurance, Life Insurance, and
>additional medical insurance based on my dad's Huntington's disease. My
>father is losing all ability to work and cannot collect disability. This
>disease is proving to be financially difficult as well as emotionally
>explosive.
You would be particularly interested in Nancy Wexler's (director of the
hereditary disease Foundation and at risk for Huntington's) testimony
at congressional hearings on health care reform. Her point was that with
modern molecular genetics, very soon everyone will have "pre-existing"
diseases and the way we provide insurance has to be rethought. More to the
point of your request, contact the following organizations. They support
research and public education.
The Hereditary Disease Foundation
1427 7th Street
Suite 2
Santa Monica CA 90401
(310)458-4183
Huntington's disease society of America
140 W. 22nd Street,
NY, NY 10011
(212)242-1968
The Wills Foundation
PO Box 27534
Huston TX 77227-7534
(713)956-9043
Dennis O'Brien DVM PhD
OBRIEN at vets.vetmed.missouri.edu
