Hi Y'all.
My mother is battling a neurological disease which was diagnosed
at the Laheigh Clinic to be something called Corticobasal
Ganglionic Degeneration. (CBGD is the affectionate diminutive. I
think I got the name right - but I don't have a copy of the
report handy.)
According to the doctors there, it is somewhat related to ALS,
looks a little like Parkinsons but isn't, is extremely rare, and
we're in for hell. In truth, hell's started already, but we've
heard that this is just the beginning.
My mother is elderly (well, she's only 65 or so, but especially
with this thing, she's elderly). She's already bedridden and
can't take care of herself at all.
I imagine that even if there was some new experimental treatment
for this or similar diseases, her case might be too far advanced
to experiment anything. But I'd still really like to know if
anybody out there knows anything about this disease.
Thanks much,
Yosi Greenfield, 75022.554 at compuserve.com