I am looking for information on this malformation particularly on what the
post operative recovery is like. I am 8 months post op from the post fossa
decompression with laminectomy of c1 and c2 and duroplasty with myofascial
graft. I am still experiencing some symptome like loss of sensory and
motor function in hands etc. I had a type 1 malformation nearly 20 mm
below the foramen magnum and my specialist says that there is usually no
symptoms after the surgery. I have had progressive symptoms for 20 years
and was finally diagnosed at 38. So now they wish to go looking for MS or
other neuro disorders. Question? What usually happens to symptoms after
surgery? What is the status of these patients in 5 years or 10 years?
Unfortunately the doctor I am dealing with can not or will not answer
these questions. Is there anyone else out there who has dealth with this?
The specialist wants to admit me next week for another MRI, a spinal tap,
EMG studies etc to look for another problem - like a 20 mm herniation is
not enough? Also Am I correct in thinking s spinal tap is not a great
thing to be doing under the circumstances? Email me s_hearts at sentex.net
