Hello, I would like to find out if pityriasis rosea has ever been
implicated in causing tonic-like seizures. My face took on a bluish tinge.
I began getting spots four to five days before I had my first tonic clonic
seizure. My husband witnessed two of these, two minutes in length. I was
put on 300mg Dialatin per day. About ten days later, I had a fever of over
101, a bad cold and my head had a burning sensation for about a week. I
stayed in bed at home that week and ate little. I remember very little. I
went to work for three weeks after that. During that time I had many more
of the spots appear. They were in my scalp, ears, nose, private parts, and
everywhere. I also had what the neurologist says was a syncope, or
fainting spell. My m.d. had increased my dosage to 400mg Dialatin. I felt
very tired and ill during this time. About 1 month after my first
hospitalization in which I received one EEG, with some activity on the
flickering light part and one Cat scan. After 1 month, I had a series of
seizures, tonic-clonic type, was rushed to hospital and given 3 days of
Dilatin I.V push. Plus I was given Valium. The next a.m., I was sent to
larger hospital, where they said immediately that because I was laying on
my side (my head and back ached alot} they called a pseudo-seizure. My
G.P. said he had also found herpes zoster in my blood at the beginning of
my first seizure. In the large hospital, I was taken off Dilantin and
seized continuously, off and on for six days while I was in there. I was
visited by a psychiatrist who said I was fine mentally. One am I had a
seizure or 'spell' as they were calling it now. They hauled me into a
shower and poured water all over me. They immediately sent me down in my
bed to EEG where neurologist did a test. I seized, bent their wires and he
said I was having pseudo-seizures.
He sent me home with 20mg immiprimine to take per day. I felt like I had
died, or was very weak and sick. I seized at home off and on, until they
couldn't stop them and I ended up in the big hospital again. This time he
had me weighed, found out I had lost 20 pounds in four weeks. I was told
by many, many people to seek as second opinion even by medical
professionals, but this neurologist decided to send me for a MRI, as there
was a difference in the two Cat scans. He sent me home with a perscription
for immiprimine and ativan, sublingual. I seized every night, my head
ached so bad. My GP was cross that a spinal tap wasn't done at the
beginning of all this mess. In a month my MRI was taken, showed nothing,
but my local GP put me on Ammiprimine and Clonazapam. The headaches
dwindled and the nightly seizures quit. That doctor went back to his home
country and I was to see a new GP because the neurologist was overworked
and suggested out seek help from a GP. I went to one I had known for years
who got all the info from the neurologist. He said he bet it was the
spots, that the virus went from the liver to my brain (maybe the fever and
burning brain, and very large glands). He figures I got post-infectious
encephalitis and the pityriasis rosea started it all. I still get seizures
during the night when I have a virus, such as a cold or flu, or am very,
very tired. Husband tells me about them in the am or I have a bad head
ache and red eyes. I have had three drop attacks and several seizures that
last from seconds to minutes. My GP, who has been in practice and has a
very good track record for diagnosis (correct). He couldn't understand at
all why I didn't receive an antiviral. I am currently seeing a
psychologist who says she believes I have a medical, not mental problem.
My big question is what do you think? Why do I still get these seizures
while I am sick? Any suggestions on what medication I should or should not
be taking? Any information will be of great help. I feel I need to know
these answers to feel comfortable and get on with my life. My last GP
said, I would have to let my antibodies build up in my body before I would
get better. He said it could be weeks, months, or years.
If you have any idea as to what might have caused these seizures, please
reply or send email to lostvalley at sk.sympatico.ca
