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sscook sscook at netonecom.net
Thu Feb 29 16:16:50 EST 1996

I was recently reading the latest CMT newsletter, and I would like 
some additional information from anyone who has some answers.  In the 
article they mention Dejerine-Sottas Disease, Roussy-Levy Syndrome, 
hereditary Sensory Radicular Neuropathy, Refsum Syndrome, and 
Friedreich's Ataxia.  What I'm wondering is how these disease differ 
from CMT, what tests can be done to determine them, and if there are 
cures for any of them.  The reason I'm wondering is because I was 
diagnosed with CMT 21 years ago at age 4.  The disease does not run in 
my family and the doctors always said it was just a mutation of my 
genes.  They diagnosed CMT through a series of EMGs.  I'm wondering 
since it was 21 years ago and I was only 4 at the time if they 
possibly misdiagnosed me.  If anyone has any answers please email me 
as soon as possible.  Thank you!  Susan

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